Submit Your Comments Early
The SCI community has the opportunity to share experiences with the FDA ahead of the virtual SCI PFDD meeting on September 29, 2026. Use the form below to submit your comment early. The comments collected may be used in the final Voice of the Patient Report (with identifying information removed).
Discussion Questions – Share Your Experiences
Topic 1: Living with SCI – Symptoms & Daily Impact
- Of all the symptoms and health effects of SCI, which 1-3 symptoms have the most significant impact on you or your loved one's life?
- How does SCI affect you or your loved one on best and on worst days?
- How have your or your loved one's symptoms changed over time? How has the ability to cope with the symptoms changed over time?
- Are there specific activities that are important to you or your loved one that you/they cannot do at all or as fully because of SCI?
- What do you fear the most as you or your loved one gets older? What worries you most about your or your loved one's condition?
Topic 2: Current and Future Approaches to SCI Treatment
- What are you currently doing to manage your or your loved one's SCI symptoms?
- How well do these treatments treat the most significant symptoms and health effects of your or your loved one's SCI?
- What are the most significant downsides to your or your loved one's current treatments and how do they affect daily life?
- Short of a complete cure, what specific things would you look for in an ideal treatment for SCI?
- What factors would be important in deciding whether to participate in a new research trial?