Be part of the conversation.
Register for the 2026 SCI PFDD Meeting.
Who can attend?
People Living with SCI
Caregivers &
Family Members
Healthcare
Professionals
Researchers,
Industry & Advocates
Everyone
What is PFDD?
Amplifies Patient Voices
Captures the lived experiences and priorities of the SCI community.
Informs Research & Trials
Helps researchers design studies around what matters most to patients.
Guides FDA Decisions
Patient perspectives become part of future regulatory discussions.
What to Expect
Join a collaborative virtual meeting where people living with spinal cord injury, care partners, clinicians, researchers, and advocates come together to share experiences that will help inform future research, treatment development, and regulatory decision-making.
Opening Remarks
Welcome to the meeting and learn how to participate.
Overview of Spinal Cord Injury
Overview of SCI, current challenges, and the treatment landscape.
Panel 1: Daily Life Impacts
Hear firsthand experiences about daily life with SCI.
Midday Break
Take a short break before the afternoon sessions.
Treatment Landscape
Learn about available treatments and management approaches.
Panel 2: Treatments & Priorities
Discuss treatment experiences, unmet needs, and future priorities.
Closing Remarks
Meeting highlights and next steps.
Throughout the Meeting
You'll have several opportunities to listen, share your experiences, and help guide the conversation.
Pre-recorded Testimony
Hear stories submitted by people living with spinal cord injury during the nomination process.
Live Polling
Answer polling questions throughout the meeting and see community responses in real time.
Public Comment
Share your perspective during designated public comment opportunities.